Partnerships in Research

The APHP supports the use of data in its custody for the purpose of research, with a view to achieving optimal health for mothers and infants in Alberta.

Any facility or individual interested in perinatal health may request data from the APHP data repository to support Health Research Ethics Board (HREB) approved projects. Request for data must be submitted on the APHP Data Use and Disclosure form. Before approval is granted, the APHP will evaluate requests according to security and confidentiality of data, scientific merit, public interest and value, and workload commitments in relationship to the time lines of the data request.

Research Request Approval Process

Completed research request forms may be submitted to the APHP by Fax 780 735 1024 or by email to kendra.malainey@albertahealthservices.ca

The APHP research request process will facilitate a single point of contact for stakeholders making requests for use of data in the custody of APHP.

The APHP Information Management Coordinator and / or analysts will review requests to ensure that the requester's question is fully understood, that the data are available, that the request is appropriate and complies with data privacy and confidentiality policies of Alberta Health Services and the APHP. Requests are addressed in the order in which they are received unless there are extenuating circumstances.

The Data Process Working Group of the Information Management Standing Committee will review and approve data requests for research. Once APHP receives the request, every effort will be made to present the request for review in a timely manner. Requesters of data for research must provide APHP with a copy of the research proposal and evidence of approval by a recognized research ethics board. One copy of the proposal and ethics letter will be retained by APHP. Information shall only be disclosed for research purposes in compliance with the Alberta Health Information Act (HIA).

  • Requests from a member of the public to view their own record(s) will be dealt with according to HIA/FOIPP legislation.
  • All requests for information from the APHP database must be in writing.
  • Written requests for data must describe in sufficient detail: the purpose of the inquiry, specific variables required, and the intended use for the information.
  • Identifiable client data will NOT be disclosed.
  • A fee to perform the request may be implemented. The fee is on a cost recovery basis. A written quote of the estimated cost to complete the request is given at the time that approval of the request is granted.
  • Data requests can be denied.
  • In any publication or presentation, the users of the data shall acknowledge the APHP and its data sources.
  • APHP will reserve the right to request a delay of publication, the request for delay and rational will be identified at the time of approval of the request.
  • All disclosures of identifiable information shall be in accordance with the HIA.

Research Results, Published Papers

The following is a list of publications resulting from use of APHP data:

  • Risks of gestational diabetes and preeclampsia over the last decade in a cohort of alberta women. Nerenberg KA. Johnson JA. Leung B. Savu A. Ryan EA. Chik CL. Kaul P. Journal of Obstetrics & Gynaecology Canada: JOGC. 35(11):986-94, 2013 Nov.
  • Improving completeness of ascertainment and quality of information for pregnancies through linkage of administrative and clinical data records. Metcalfe A. Lyon AW. Johnson JA. Bernier F. Currie G. Lix LM. Tough SC. Annals of Epidemiology. 23(7):444-7, 2013 Jul.
  • Examining caesarean section rates in Canada using the Robson classification system. Kelly S. Sprague A. Fell DB. Murphy P. Aelicks N. Guo Y. Fahey J. Lauzon L. Scott H. Lee L. Kinniburgh B. Prince M. Walker M. Journal of Obstetrics & Gynaecology Canada: JOGC. 35(3):206-14, 2013 Mar.
  • Gestational age at birth and risk of autism spectrum disorders in Alberta, Canada. Leavey A. Zwaigenbaum L. Heavner K. Burstyn I. Journal of Pediatrics. 162(2):361-8, 2013 Feb.
  • Autism spectrum disorders and fetal hypoxia in a population-based cohort: accounting for missing exposures via Estimation-Maximization algorithm. Burstyn I. Wang X. Yasui Y. Sithole F. Zwaigenbaum L. BMC Medical Research Methodology. 11:2, 2011 Jan.
  • Influence of oligohydramnios on preterm premature rupture of the membranes at 30 to 36 weeks' gestation. Coolen J. Kabayashi K. Wong K. Mayes DC. Bott N. Demianczuk N. Journal of Obstetrics & Gynaecology Canada: JOGC. 32(11):1030-4, 2010 Nov.
  • Maternal thyroid hormones in early pregnancy and risk of breech presentation. Salehidobakhshari M. Bamforth F. Burstyn I. Journal of Obstetrics & Gynaecology Canada: JOGC. 32(10):948-55, 2010 Oct.
  • Autism spectrum disorders, maternal characteristics and obstetric complications among singletons born in Alberta, Canada. Burstyn I. Sithole F. Zwaigenbaum L. Chronic Diseases in Canada. 30(4):125-34, 2010 Sep.
  • Antepartum risk score predicts adverse birth outcomes. Burstyn I. Journal of Obstetrics & Gynaecology Canada: JOGC. 32(1):16-20, 2010 Jan.
  • The impact of isolated maternal hypothyroxinemia on perinatal morbidity. Hamm MP. Cherry NM. Martin JW. Bamforth F. Burstyn I. Journal of Obstetrics & Gynaecology Canada: JOGC. 31(11):1015-21, 2009 Nov.
  • Modifiable risk factors for term large for gestational age births. Jaipaul JV. Newburn-Cook CV. O'Brien B. Demianczuk N. Health Care for Women International. 30(9):802-23, 2009 Sep.
  • Evaluation of the accuracy of self-reported smoking in pregnancy when the biomarker level in an active smoker is uncertain. Burstyn I. Kapur N. Shalapay C. Bamforth F. Wild TC. Liu J. LeGatt D. Nicotine & Tobacco Research. 11(6):670-8, 2009 Jun.
  • The risk of unexplained antepartum stillbirth in second pregnancies following caesarean section in the first pregnancy. Wood SL. Chen S. Ross S. Sauve R. BJOG: An International Journal of Obstetrics & Gynaecology. 115(6):726-31, 2008 May.
  • em>Outcomes of maternity care services in Alberta, 1999 and 2000: a population-based analysis. Iglesias S. Bott N. Ellehoj E. Yee J. Jennissen B. Bunnah T. Schopflocher D. Journal of Obstetrics & Gynaecology Canada: JOGC. 27(9):855-63, 2005 Sep.
  • Surgical site infection following elective Caesarian section: a case-control study of postdischarge surveillance. Griffiths J. Demianczuk N. Cordoviz M. Joffe AM. Journal of Obstetrics & Gynaecology Canada: JOGC. 27(4):340-4, 2005 Apr.
  • Updating reference values for placental weights in Northern Alberta. Dy CL. Chari RS. Russell LJ. American Journal of Obstetrics & Gynecology. 190(5):1458-60, 2004 May.
  • Is maternal obesity a predictor of shoulder dystocia? Robinson H. Tkatch S. Mayes DC. Bott N. Okun N. Obstetrics & Gynecology. 101(1):24-7, 2003 Jan.
  • Association of preeclampsia with high birth weight for gestational age. Jacquemyn Y. Martens G. Ruyssinck G. American Journal of Obstetrics & Gynecology. 186(5):1105; author reply 1106, 2002 May.
  • Maternal smoking and preeclampsia. Xiong X. Wang FL. Davidge ST. Demianczuk NN. Mayes DC. Olson DM. Saunders LD. Journal of Reproductive Medicine. 45(9):727-32, 2000 Sep.